‘It Will Consume Your Life’: 4 Families Take On Rare Diseases

Confronted by illnesses that most scientists overlook, these families had to work out their own approaches to find treatments.
By BY GINA KOLATA from NYT Health https://ift.tt/31Rkh2n
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Rare and Orphan Diseases, Genetics and Heredity, Research, Science and Technology, Rett's Syndrome, Drugs (Pharmaceuticals), Children and Childhood, Philanthropy, Clinical Trials
Source New York Times
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